Privacy Policy

Privacy Notice for website visitors

Long Covid Coalition is committed to protect the privacy and security of your personal information. The privacy notice describes how we collect and use personal information about you during and after you have provided services to us, in accordance with the General Data Protection Regulation (GDPR).

Long Covid Coalition is “data controller”. This means that we are responsible for deciding how we hold and use personal information about you. We are required under data protection legislation to notify you of the information contained in this privacy notice. The notice applies to current and former employees, contractors and subcontractors.

Who we are



Our website address is:

Your Rights

Under the GDPR and the Data Protection Act 2018 (DPA) you have a number of rights with regard to your personal data; which this policy and our use of your data has been designed to uphold:

Right to be informed – you have the right to be informed about the collection and use of your personal data

Right of access – you have the right to request a copy of information that we hold about you.

Right of rectification – you have a right to correct data that we hold about you that is inaccurate or incomplete.

Right to be forgotten – in certain circumstances you can ask for the data we hold about you to be erased from our records.

Right to restriction of processing – where certain conditions apply, you have a right to restrict our processing.

Right of portability – you have the right to have the data we hold about you transferred to another organisation.

Right to object – you have the right to object to certain types of processing (such as direct marketing).

If you have cause for complaint about our use of your data, or you would like to exercise any of your rights, then please contact us using the details provided in Section 1 and we will do our best to solve the problem for you.

If we are unable to help, or you aren’t satisfied with our response, you also have the right to lodge a complaint with the UK’s supervisory authority – The Information Commissioner’s Office (ICO). The ICO can be contacted:

By post – The Information Commissioner’s Office, Wycliffe House, Water Lane, Wilmslow, SK9 5AF

By telephone – 0303 123 1113

Via its website –

What Data Do We Collect from You? 

If you use our websites, we will collect some data automatically from you when you use our website. That information is:

Your IP address, login information, browser type and version, time zone setting, browser plug-in types, geolocation information about where you might be, operating system and version.

Your URL clickstreams (the path you take through our site), products/services viewed, page response times, download errors, how long you stay on our pages, what you do on those pages, how often, and other actions.

If you are a customer we will collect additional information which you provide to us:

Contact Details – Your name, address, phone number, email address.

Purchase & Quote Details – Information about products and services you have purchased or enquired about.

Financial Information – Your bank or payment details when you purchase from us.

If you are a subscriber to our marketing content:

Contact Details – Your name and email address.

How We Use Your Data

Data protection law means that we can only use your data for certain reasons and where we have a legal basis to do so. Here are the reasons for which we process your data:

Orders & Quotes – We’ll use the details you provide to process any orders that you make with us using our website, apps. If we don’t collect this information we won’t be able to process your order and comply with our legal obligations. Our legal basis for this is contractual obligation.

Keeping Our Website Running: providing and managing your access to our website and services, personalising and tailoring your experience on our website and services. Our legal basis for this is legitimate interest (see below).

Improving Our Website: Testing features, interacting with feedback platforms and questionnaires, managing landing pages, heat mapping our site, traffic optimization and data analysis and research, including profiling and the use of machine learning and other techniques over your data and in some cases using third parties to do this. Our legal basis for this is legitimate interest (see below).

Marketing Purposes: We may send you emails and messages about new features, products and services, and content. You will always be able to unsubscribe from these. Our legal basis for doing that is either consent or legitimate interest (see below).

Answering Your Queries & Customer Support: We will use your email and contact details to answer your contact requests and queries. Our legal basis for doing so is contractual obligation.

Preventing Fraud & Crime: We use some data to protect our business and your account from fraud and other illegal activities (for example, we use CCTV to prevent crime; and we look for out irregular orders on our websites). Our legal basis for doing so is legitimate interests.

Legal Basis

We have identified a legal basis for each of our purposes in paragraph 4. This is what they mean:

Legitimate Interest:

Processing your data is necessary for our legitimate interests or the legitimate interests of a third party, provided those interests are not outweighed by your rights and interests. These legitimate interests are:

gaining insights from your behaviour on our website

delivering, developing and improving our service

enabling us to enhance, customise or modify our services and comms

enhancing data and physical security

promoting our products, services and business.

responding to customer enquiries, contact requests and promoting our services.

In each case, these legitimate interests are only valid if they are not outweighed by your rights and interests.

You can always object to our processing of your data based on legitimate interest. If you do so and we have no other legal basis for processing your data we will stop. If we do have another legal basis we will continue to do so, subject to your legal rights.


You have given clear consent for us to process your personal data for a specific purpose.

You can always withdraw your consent. You can do this by clicking on unsubscribe in any marketing email we send, or by getting in touch via the contact details in paragraph 1.

If you withdraw your consent and we have no other legal basis for processing your data we will stop. If we do have another legal basis we will continue to do so, subject to your legal rights.

Contractual Obligation:

Processing your data is necessary for a contract you have with us, or because we have asked you to take specific steps before entering into that contract.

Storing and Sharing Your Data

Data security is very important to us and we take appropriate security measures to safeguard and secure your data which is collected via our website and services.

We endeavour to keep all of your personal information in the European Economic Area (EEA). The EEA includes all EU Member States plus Norway, Iceland and Liechtenstein.

In limited, and necessary, circumstances your information may be transferred outside of the EEA; this will only happen where it can’t be avoided. Where this does happen, we will put special protections in place. We will only move data to countries or organisations:

Where the EU Commission has deemed their data protection measures to be adequate;

Or under a contract which enforces the EU Commission approved “standard data protection clauses” which can be viewed at

We will never sell your personal data to a third party.

We will transfer or disclose your personal data to any third party except:

We may sometimes contract with trusted service providers to provide goods and services on our behalf. These may include payment processing, delivery of goods, search engine facilities, advertising, marketing and IT systems. This will sometimes necessitate the transfer of your personal data to those trusted service providers.

Where we transfer your data to our trusted service providers we will have confirmed that they will apply data protection and security measures to the same standard we would. We will always impose contractual terms on all of our providers to ensure your data remains secure.

In certain limited circumstances we may be legally required to share your personal data – for example where we are involved in legal proceedings, or where we are complying with a court order, regulatory requirement, or government department with appropriate legal authority to compel us to do so.

How Long We Keep Your Data

We do not keep your personal data for any longer than it is necessary in light of the reason(s) for which it was first collected and for our obligation under other laws.

We may need to keep your information to establish, bring or defend legal claims. We’ll therefore always keep your personal data for 7 years after the date it is no longer necessary for us to hold it.

At the end of that period your data will be either deleted completely or anonymised.

Exceptions to the above will be:

Where you have exercised your right to have the information where it applies.

Where the law requires us to keep your data for longer or delete it sooner.

Where a legal claim is in progress – we’ll keep your data until that claim is concluded.


This privacy notice was last updated in June 2022.